End-of-Life Care for People with Dementia

Understand the needs of people with dementia, and their families, and how to provide them with better quality end-of-life care. Join UEA's online course.

Duration

3 weeks

Weekly study

3 hours

Premium course

What's included?

Find out how to better support people with dementia at the end of life

A range of research has shown that the end-of-life care needs of people with dementia, and their families, are poorly understood and inconsistently addressed.

An awareness of the psychosocial, physical and spiritual needs of the whole person is key to tackling this issue - something that this online course will give you.

You’ll develop the knowledge and understanding that will help you provide better quality support to - and enhance the wellbeing and dignity of - people with dementia towards the end of life. You’ll also learn to better communicate and co-ordinate care with their families.

  • Week 1

    Maintaining dignity through relationship

    • Introduction

      Whatever our health status, every human being needs to connect with others, at every stage of life, including at the very end of life. This week we explore the concept of maintaining dignity through social relationships.

    • Connecting with others

      A holistic approach to end of life dementia care incorporates all aspects of the individual, including their connections with others. In this section, we focus on meeting social needs and maintaining effective communication.

    • Advance care planning

      Experiencing ‘a good death’ which meets the needs of the person with dementia and their family, requires communication about end of life wishes and preferences at an early stage.

    • Expressing self

      This section focuses on different aspects of self-expression, the environment of care and possible misconceptions about the sense of identity experienced by people living with dementia towards the end of life.

  • Week 2

    Maintaining dignity through comfort

    • Introduction

      The approach for all dementia care should follow the WHO definition of Palliative Care (2014) which considers the holistic approach to caring. In this week we will focus on comfort and wellbeing.

    • Wellbeing at the end of life

      Whilst keeping in mind social connectedness and psychological needs, we now focus on how holistic end of life care can be enhanced by good physical care, and the maintenance of comfort and wellbeing.

    • Nutrition and hydration

      Enabling individuals to exercise choice around eating and drinking may involve some difficult ethical decisions around beginning, continuing or stopping fluid intake and nutritional supplementation, as the end of life approaches.

    • Symptom management

      Some people fear dying in pain or with other distressing symptoms. Pain management, the prevention and management of delirium, and other approaches to managing physical symptoms become vital for good end of life care.

  • Week 3

    Maintaining dignity through finding meaning

    • Introduction

      This course has been underpinned by the concept of dignity and holistic care. In this final week we consider aspects of spiritual care - such as supporting people's religious beliefs and finding meaning in life, and death.

    • Finding meaning

      Attempts to find meaning in life and death may be expressed through experiences of formal or informal religion, as well as through reminiscence-based discussions, activities and prompts.

    • Specialist support

      In the United Kingdom, specialist support for the families of people living with dementia is often provided by Admiral Nurses. We now look at their role, as well as ways of managing and coming to terms with anticipatory grief.

    • Supporting families through grief

      Support for people living and dying with dementia, as well as for their families and friends, can come from a range of sources, such as informal social networks or more formal religious organisations, traditions and rituals.

    • Summary

      Congratulations on reaching the end of the course. We hope that you have found it helpful, and that it will enhance your work with people living with dementia and their families, at the end of life.

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